The Alliance for Lupus Research held a Walk-a-thon on Saturday, May 18th. The Walk raised about $9,000 for research in finding a cure to Lupus. The ALR donates 100% of the proceeds to research of the disease, which as of now there is no known cure.
Robert Wood Johnson IV founded the ALR after his daughter, Jamie, was diagnosed with the disease. Being a parent of a child who was diagnosed with Lupus and being the head of one of the world’s leading health care representative, Robert Wood Johnson IV was determined to pave the way in finding a cure to Lupus. With all the resources he had in his hands, he had struggled to find information that could aid in his daughter’s disease.
The Walk-a-thon on Saturday was sponsored by Atlantic Health System, Wells Fargo, Robert Wood Johnson University Hospital, Princeton Healthcare System, Johnson & Johnson, and Barnabas Heath.
Lupus is an autoimmune disease, which has the immune system of a body turns against itself. There are treatments for the disease, however a cure has not been found. Although the disease mainly effects women, there are men who have been found with the disease.
The symptoms of Lupus vary greatly so it has been difficult for researchers to estimate how many people in the United States have the disease. As of now, research has stated that there are roughly around 1.5 million living with Lupus in the country.
According to LupusResearch.org, “signs of lupus can mimic the warning signs of other diseases. Common symptoms of lupus include persistent low-grade fever, extreme fatigue, and painful or swollen joints. The so-called lupus rash, which often manifests as a butterfly-shaped reddish or purplish rash across the bridge of the nose and cheeks, is another common medical sign.”
The disease is two to three times as likely to be found in African-American women, but is also more common in women of Hispanic, Native American, or Asian decent. Lupus is reported to run in families, but immediate relatives of a patient have a low chance of having the disease.
There is no single known test to diagnose the disease and doctors may need several months or years to make a diagnosis.